Financial Support for Caregivers

What financial resources or assistance have you found helpful to ease the financial burden of caregiving?

1. Government Programs

Medicaid & Medicaid Waivers:
Many states offer Medicaid Home and Community-Based Services (HCBS) waivers, which may pay family caregivers for providing in-home care. These “consumer-directed” or “self-directed” programs allow care recipients to choose their own caregivers, including family members, and pay them a stipend[1][2][3].
Medicare:
While Medicare does not typically pay for long-term caregiving, it may cover certain home health services and hospice care[4].
Social Security:
Disability and survivor benefits may be available, and some caregivers may qualify for Social Security credits based on their caregiving role[5].

Caregiving Grants:
Various nonprofits and foundations offer grants to family caregivers, which can be used for respite care, home modifications, medical equipment, or other caregiving expenses. Examples include the Alzheimer’s Foundation and the National Family Caregiver Support Program (NFCSP)[6][7][8].
National Family Caregiver Support Program (NFCSP):
Provides grants to states to fund respite care, counseling, training, and supplemental services for caregivers[8].

VA Aid and Attendance & Housebound Benefits:
Veterans and their families may receive monthly payments to help cover the cost of in-home care, which can include payment to family caregivers[5][1].
Veteran-Directed Care Programs:
These programs offer flexible budgets that allow veterans to hire family members as paid caregivers[1].

If your loved one has long-term care insurance, check the policy—many plans cover in-home care and may allow payment to family caregivers[4][1].

Child and Dependent Care Credit:
Caregivers may qualify for federal tax credits and deductions, such as for medical expenses or dependent care, which can help offset costs[5].
Consult a Tax Professional:
To maximize benefits, work with a tax advisor familiar with caregiving-related credits and deductions[5].

Paid Family Leave:
Some states and employers offer paid family leave programs, allowing caregivers to take paid time off to care for a loved one[5][1].
Flexible Spending Accounts (FSAs) & Employee Assistance Programs (EAPs):
These may provide financial relief for caregiving-related expenses[5][7].

Area Agencies on Aging (AAA):
Local AAAs can connect caregivers with respite care, meal delivery, adult day programs, and financial counseling[1].
Nonprofit Organizations:
Groups like the Family Caregiver Alliance and the Caregiver Action Network offer grants, resources, and support services[5][7][4].

Some states offer structured programs (often through Medicaid waivers) that provide a daily stipend and coaching to family caregivers, along with respite and support services[3].